Thank you everyone for your thoughts and prayers over the last few weeks and especially the last couple days. We are home and happy to be here! The tests went well... difficult at times but well. The neurologist came in this morning and let us know that they did see some abnormalities on the EEG and it did confirm what we already knew, that Sophia has epilepsy. The good news is that the doctor does not want to start her back on medication. They are going to do another test in 2 months to see if the seizure activity in the brain is any worse (there is still a small amount of medication in her system that could be helping it not to be so bad). Then another EEG four months after that. If she does good during this time and doesn't have any serious seizure episodes she should be able to remain medication free. We are still supposed to use Diastat for seizures over four minutes but anything other we are to document and let the doctor know. What a relief to have this over with.. it was worth it! Thank you for your kindness, thoughts, and prayers. We are so blessed to have such wondeful family and friends.
Love,
Tony, Holly, Sophia, and Troy
No comments:
Post a Comment